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Monday, 11 January 2016

Understanding the role of Indigenous community participation in Indigenous prenatal and infant-toddler health promotion programs in Canada: A realist review

Volume 150, February 2016, Pages 128–143

  Open Access

Highlights

We identify successful indigenous child health promotion programs in Canada.
We apply realist methods to study how, why and in what contexts programs work.
We demonstrate a new pathway linking indigenous ownership to program success.

Abstract

Purpose

Striking disparities in Indigenous maternal-child health outcomes persist in relatively affluent nations such as Canada, despite significant health promotion investments. The aims of this review were two-fold: 1. To identify Indigenous prenatal and infant-toddler health promotion programs in Canada that demonstrate positive impacts on prenatal or child health outcomes. 2. To understand how, why, for which outcomes, and in what contexts Indigenous prenatal and infant-toddler health promotion programs in Canada positively impact Indigenous health and wellbeing.

Methods

We systematically searched computerized databases and identified non-indexed reports using key informants. Included literature evaluated a prenatal or child health promoting program intervention in an Indigenous population in Canada. We used realist methods to investigate how, for whom, and in what circumstances programs worked. We developed and appraised the evidence for a middle range theory of Indigenous community investment-ownership-activation as an explanation for program success.

Findings

Seventeen articles and six reports describing twenty programs met final inclusion criteria. Program evidence of local Indigenous community investment, community perception of the program as intrinsic (mechanism of community ownership) and high levels of sustained community participation and leadership (community activation) was linked to positive program change across a diverse range of outcomes including: birth outcomes; access to pre- and postnatal care; prenatal street drug use; breast-feeding; dental health; infant nutrition; child development; and child exposure to Indigenous languages and culture.

Conclusions

These findings demonstrate Indigenous community investment-ownership-activation as an important pathway for success in Indigenous prenatal and infant-toddler health programs.

Keywords

  • Indigenous;
  • Prenatal health promotion;
  • Child health promotion;
  • Program evaluation;
  • Realist review

1. Introduction

As a relatively affluent country, Canada is well positioned to respond to the striking health inequities experienced by its growing population of Indigenous infants and children (Postl et al., 2010, Smylie, 2014 and Unicef, 2009). Investments in prenatal and infant-toddler health promoting programs have been demonstrated to improve maternal, infant and child health outcomes (Anderson et al., 2003, Chung et al., 2008 and World Health Organization, 2014), some even when they are rooted in population specific disparities in the social determinants of health (Anderson et al., 2003 and Dyson et al., 2014) which is certainly the case for Indigenous children in Canada (Anderson et al., 2003, Dyson et al., 2014, Findlay and Janz, 2012, Loppie Reading and Wien, 2009 and McNeil et al., 2009). Numerous Indigenous specific and mainstream programs with significant Indigenous participation currently exist and are funded through investments at the federal, provincial/territorial, and municipal levels (Aboriginal Affairs, 2013a, Aboriginal Affairs, 2013b and Human Resources and Skills Development Canada, 2010).
Despite this marked health inequity and sizeable program response, there is a gap in the literature that systematically identifies, documents and evaluates the effectiveness of Indigenous prenatal and infant-toddler health promotion programs in Canada (Health Council of Canada, 2011, McNeil et al., 2009 and Smylie and Adomako, 2009). Evidence indicates that health promoting approaches effective in non-Indigenous contexts will not necessarily be effective in Indigenous contexts and point towards a need for messaging and approaches that reflect local Indigenous systems of health knowledge and practice (Health Council of Canada, 2011, McNeil et al., 2009 and Tipene-Leach et al., 2010). A synthesis of the evidence regarding program effectiveness specific to Indigenous contexts is therefore urgently required. In addition to the classic review of program effectiveness, a realist inquiry into how, why and in what contexts programs are working is also extremely relevant for ongoing policy and practice.
Approaches to evidence synthesis based on realism encompass a number of features which align well with existing scholarship bridging the domains of Indigenous knowledge and public health. While Indigenous and modern public health evidence assessment share a reliance on empirical observations of outcomes, there are significant differences in Indigenous and public health knowledge systems and assumptions, which can lead to faulty underlying theory if not attended to. For example, Indigenous hypothesis testing is almost always specific to a local socio-ecologic context (Youngblood Henderson, 2000) and classic biomedical hypothesis tests purposefully seek a distancing from context in a positivist quest for generalizability. Realist approaches to evidence synthesis provide an opportunity to bridge these tensions by allowing for the explicit formulation of testable theories (Pawson et al., 2005 and Wong et al., 2013a) which can be constructed in alignment with Indigenous knowledge systems and assumptions. Realist reviews involve a theory-driven approach which seeks to uncover key program mechanisms and contextual factors that are linked to program success (or failure) (Pawson et al., 2005 and Wong et al., 2013a). Such an approach guards against the non-explicit application of faulty Eurocentric theory, which is a common Indigenous critique of mainstream evidence synthesis (Smith, 2012 and Smylie et al., 2011).
Both Indigenous and realist knowledge theorists describe a complex and inter-related reality, of which humans impartially know and describe – but with focus and rigour can come to know and describe better (Battiste and Youngblood Henderson, 2000 and Kirst and O'Campo, 2012). The explanatory nature of realist review was also deemed desirable by our front line Indigenous prenatal and infant-toddler health promotion program and service provider knowledge user partners as it would support successful adaptation of best practices to local settings.